I woke up to Guy Fieri shoving what looked to be a large
piece of chorizo into his gob. It took me awhile to realize that I was not an
unfortunate bystander on the show and that I had a remote control that could
turn that off.
Anyways…
I also realized that I have a lot of shit on my mind and I
need to get it down so I can be at peace and maybe get some sleep. This post
may contain a lot of cursing, but it’s my brain, so I’ll apologize and leave it
at that.
See, having been well trained on Maslow’s Hierarchy of Needs
as well as stages of loss and grief, and a lot of other psychological goodies
that pertain to nursing, I realize that I’m going through a lot of emotions and
levels of strength and other things that just really tend to f*ck a person up.
Yesterday and the day before I started into the anger phase.
The “why me’s” and the “dammits” and the “I’m irritated and mad at this bread
crust for no reason at all.” Today it kind of came to a head when I was calling
a million offices trying to schedule a million things – namely this damn
cardiac CT scan! Three days ago I called my cardiologist’s office to find out
about setting up my second attempt at a CT scan. (Remember my first attempt?) I
was told that he had gone on vacation early. I asked politely to have another
physician please order the scan as I was on a heavy dose of metoprolol and it
wasn’t awesome. Two days ago I had called my cardiologist’s office and was told
that he was not, in fact, on vacation, and was inquiring after my heart rate,
to which I replied it was fine, PLEASE ORDER THE SCAN. Today I called the
cardiologist’s office to inquire about the date for the scan, and was told the
same thing as two days ago, that he would order it. I said, please do, as it’s
Friday, and I have an appointment with the surgeon on Tuesday.
A couple of hours later I called the CT/MRI scan place
myself just to see if the order had been placed. I now have an appointment IN
TEN DAYS because there is one cardiologist at this place one day a week
(Wednesdays) to perform the reading. So that means I not only have to
reschedule the surgeon (for the second time) but now have to be on the
metoprolol another ten days, therefore in an exhausted and weakened state. I’m
only halfway through this shit? Are you f*cking kidding me right now? Doesn’t
anyone care that I’m stuck at home unable to do anything because I feel as if I’m
98 years old with half a lung and the heart rate 2/3 of what it is used to?
Mostly, I’m angry because I’m weakened and so much of this crap
is out of my control.
It was another huge wake-up call…. Personally and
professionally. No wonder so many of our patients don’t follow through with
follow up care. It’s damn impossible!!! I have the fortitude to sit here and
insist on appointments and care, however I can only imagine not knowing the
language, or being sicker than I am and not having the strength to deal with
the constant back-and-forth.
I haven’t considered myself “weak” in a lot of years, and it’s
really frustrating. I know my inner “me” is NOT weak but rather strong.
However, I also see the expression on children’s faces when I drag my oxygen
tank into the elevator, and I see the look of pity on adult’s faces when I walk
by them. I’m not my equipment, people. I’m healthy other than a mutant heart, a
recent kidney injury, and a medication that makes me feel like a zombie. It’s
also amazing how short of breath I get doing random things like trying to
locate a bagel in the freezer.
I’m still that stubborn mule, just a little pissed off and
over-emotional at the moment. I almost broke down when replacing one of my
oxygen tanks because the regulator wouldn’t snap on correctly. When did my
patience become that of a gnat on steroids?!
[When doing a search for "zero patience," I ended up with a lot of zombie pictures and something called "patient zero." Which, I guess, is about what I feel like half the time, but still not even relevant to this so I'll skip it. Instead, here is a photo of what I feel like on metoprolol...]
I'm ready for my modeling career! |
I get jealous watching people take walks outside. I follow
Facebook postings of travels with glee, living vicariously through my friends
who are frolicking in turquoise waves or snowboarding in Tahoe. I work really
hard to get through these feelings in a healthy manner, and am well aware of
the signs of depression… according to the zillion heart patient blogs I’ve
read, this is super normal. I’m not there yet, but am on the lookout for it.
I know this has been hard on the parents as well. They’ve
been pretty amazing, I have to say. I know they’re going through their
thoughts. The other night I told my mom flat out that I’m scared of this
surgery coming up. We had a good talk about it, and I felt better just for
voicing that fear. Dad and I also have our conversations, and the other morning
I launched into a monologue about work, and the awesome people I work with, and
some silly stories. It was good to have a normal talk. I miss normal. Even when
normal was exceptionally stressful and I would say “I NEED A BREAK.” Well, this
wasn’t what I had in mind.
I’m still grateful, though, that it was discovered and will
be fixed. Eventually. Maybe, at the rate these appointments are being made, I
will be that 98 year old patient hobbling down the street. I still insist on
laughing, though, and know that all of this will pass over. I will heal, and
get back to life. It will be scary, and it will hurt, and it will be a lot of
physical therapy and rehab and pain and crying and determination.
Ya, mule, ya!
"Keep Calm and Chive On" - pre-Zipper |
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